Blue eyes and other genetic prizes.

Some of you might know already as it has been mentioned on this blog, but Maya has been getting ultrasounds at CHLA since she was 2.5 weeks old in order to rule out DDH (Developmental dysplasia of the Hip). Due to her breech presentation at birth (and the fact she is a girl), she was at more risk for it, not to mention Evan’s cousin Dawn was born with this as well. The first ultrasound was slightly abnormal.  The second, done @ about 9 weeks old, was 50% better than the first, but still not normal.  The third, done on the 16th of April was to be our last, the one that would put her in the clear – but unfortunately the results were still abnormal. Our pediatrician Dr. Frend recommended we see an orthopaedist at Children’s.  While Evan went with us on our first appt. and the lovely Wendi accompanied us on the next two, my Mom came with us today.  I knew that if the news was not the best, I would need moral support and was glad my Mom was coming along.

We were seen first by a woman who was very lovely but whose name I forget (please forgive me) and then by Dr. Kay, a Harvard and Johns Hopkins-trained MD specializing in hip disorders among other things.  After looking at Maya’s ultrasounds, at Maya and talking with the physician’s assistant re: her examination, he recommended that she wear a hip brace at night for about 2 months as opposed to repeating the ultrasound again or putting her in a cast (that option thankfully he said she did not need). Though the problem is slight, it still needs to be corrected.  So, my little love was fitted with a brace – two cuffs separated by a metal bar and attached to her via a few strips of velcro.  She was a champ – hardly fussed at all during the fitting — and seeing her in it pretty much broke my heart.

Thank G-d I was in a Children’s Hospital….so I could quickly be reminded that things could be about 1 billion times worse.  Even if heaven forbid she needs further treatment at the end of this two month period, this is still so much better than any of the things that some of the kids we saw today have to deal with. The sweet little boy in his PJs in the elevator on his way down from neurology who told me Maya was so cute…and that he “just wanted to let me know” she was eating my shirt. The girl with the handkerchief around her head to hide the hair loss from chemo being wheeled into the bathroom.

Of course, this didn’t make the putting on of the thing any easier tonite.  She cried through the whole thing and so did I. But in the end she fell asleep 2 minutes after I put her in her crib, whether from the comfort of her routine or exhaustion or a combination of the two.  And I found comfort in Evan’s arms and the 31-cent scoops he brought me from Baskin-Robbins (not to mention the large Mickey D’s french fries I indulged in at the hospital). I’m sure it will get easier (ok, I’m not sure, but I hope)…and in the meantime I will keep thinking about the boy in the elevator and remember to thank my lucky stars.

By Joy

I'm 42, a remarried mom of an 8 year old girl and a toddler son, a teacher, and a writer. People tell me I tend to be brutally honest and ...tell it like it is, so I had hoped to use this outlet to keep me sane while I got used to my new life as a stay-at-home Mom back when I was home with my worked. And it's been therapeutic through the end of a marriage and the emergence of me...


  1. She’s as lucky to have you during all this as you are to have had her! Perspective is everything and God gave you that perspective today. Hugs and prayers to you…and a little extra especially for Maya. Love ya guys.

  2. I was so glad to be with you and Maya yesterday..I knew you needed the support as much as I did – this was one day the rewards of being a mommy become abundantly clear…to be there when you are needed most (she types as the tears run down her face). And Dawn Mc. is absolutely right about perspective – even if you don’t quite feel it yet!

  3. I know that all of this is difficult to witness and experience with your child but be thankful that this is something that can and will be fixed! Though tears may fall, remember that Maya is otherwise a beautiful, healthy and happy baby! Love you guys mucho!

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